- November 14th 2005 at the Institut de Myologie, Paris, France
- January 22nd 2007 at the Institut de Myologie, Paris, France
- April 2nd 2007 meeting of the steering committee
- October 1 2007 telephone meeting of the steering committee
- November 17 2007 telephone meeting of the steering committee
- January 21 2008 telephone meeting of the steering committee
- March 10 2008 telephone meeting of the steering committee
- May 5 2008 telephone meeting of the steering committee
- June 16 2008 telephone meeting of the steering committee
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